
QUALITY OF LIFE
AGED CARE CONSUMERS


QUALITY OF CARE EXPERIENCE
AGED CARE CONSUMERS
PEER-REVIEWED PUBLICATIONS
QOL-ACC
Background
Milte, C. M., Walker, R., Luszcz, M. A., Lancsar, E., Kaambwa, B., & Ratcliffe, J. (2014). How Important Is Health Status in Defining Quality of Life for Older People? An Exploratory Study of the Views of Older South Australians. Applied Health Economics and Health Policy, 12(1), 73–84. https://doi.org/10.1007/s40258-013-0068-3
Ratcliffe, J., Lancsar, E., Flint, T., Kaambwa, B., Walker, R., Lewin, G., Luszcz, M., & Cameron, I. D. (2017). Does one size fit all? Assessing the preferences of older and younger people for attributes of quality of life. Quality of Life Research, 26(2), 299–309. https://doi.org/10.1007/s11136-016-1391-6
Cleland, J., Hutchinson, C., Khadka, J., Milte, R., & Ratcliffe, J. (2019). A Review of the Development and Application of Generic Preference-Based Instruments with the Older Population. Applied Health Economics and Health Policy, 17(6), 781–801. https://doi.org/10.1007/s40258-019-00512-4
Ratcliffe, J., Kaambwa, B., Hutchinson, C., & Lancsar, E. (2020). Empirical Investigation of Ranking vs Best–Worst Scaling Generated Preferences for Attributes of Quality of Life: One and the Same or Differentiable? The Patient : Patient-Centered Outcomes Research, 13(3), 307–315. https://doi.org/10.1007/s40271-019-00406-6
Development
Ratcliffe, J., Cameron, I., Lancsar, E., Walker, R., Milte, R., Hutchinson, C. L., Swaffer, K., & Parker, S. (2019). Developing a new quality of life instrument with older people for economic evaluation in aged care: study protocol. BMJ Open, 9(5), e028647–e028647. https://doi.org/10.1136/bmjopen-2018-028647
Cleland, J., Hutchinson, C., McBain, C., Walker, R., Milte, R., Khadka, J., & Ratcliffe, J. (2021). Developing dimensions for a new preference-based quality of life instrument for older people receiving aged care services in the community. Quality of Life Research, 30(2), 555–565. https://doi.org/10.1007/s11136-020-02649-5
Cleland, J., Hutchinson, C., McBain, C., Khadka, J., Milte, R., Cameron, I., & Ratcliffe, J. (2023). From the ground up: assessing the face validity of the Quality of Life – Aged Care Consumers (QOL-ACC) measure with older Australians. Quality in ageing and older adults, 24(1/2), 3–18. https://doi.org/10.1108/QAOA-07-2022-0046
Hutchinson, C., Ratcliffe, J., Cleland, J., Walker, R., Milte, R., McBain, C., Corlis, M., Cornell, V., & Khadka, J. (2021). The integration of mixed methods data to develop the quality of life – aged care consumers (QOL-ACC) instrument. BMC Geriatrics, 21(1), 702–702. https://doi.org/10.1186/s12877-021-02614-y
Khadka, J., Hutchinson, C., Milte, R., Cleland, J., Muller, A., Bowes, N., & Ratcliffe, J. (2022). Assessing feasibility, construct validity, and reliability of a new aged care-specific preference-based quality of life instrument: evidence from older Australians in residential aged care. Health and Quality of Life Outcomes, 20(1), 159–159. https://doi.org/10.1186/s12955-022-02065-y
Ratcliffe, J., Bourke, S., Li, J., Mulhern, B., Hutchinson, C., Khadka, J., Milte, R., & Lancsar, E. (2022). Valuing the Quality-of-Life Aged Care Consumers (QOL-ACC) Instrument for Quality Assessment and Economic Evaluation. PharmacoEconomics, 40(11), 1069–1079. https://doi.org/10.1007/s40273-022-01158-2
Khadka, J., Ratcliffe, J., Hutchinson, C., Cleland, J., Mulhern, B., Lancsar, E., & Milte, R. (2022). Assessing the construct validity of the Quality-of-Life-Aged Care Consumers (QOL-ACC): an aged care-specific quality-of-life measure. Quality of Life Research, 31(9), 2849–2865. https://doi.org/10.1007/s11136-022-03142-x
Hutchinson, C., Ratcliffe, J., Cleland, J., Milte, R., Muller, A., Ly, M., Hannaford, N., & Khadka, J. (2024). Further Evidence of Feasibility, Validity, and Reliability of Quality of Life-Aged Care Consumers: Evidence from Home-Based Care Settings. Value in Health, 27(9), 1206–1214. https://doi.org/10.1016/j.jval.2024.05.003
Khadka, J., Milte, R., Hutchinson, C., Cleland, J., & Ratcliffe, J. (2024). Reliability of the quality of life-aged care consumers (QOL-ACC) and EQ-5D-5L among older people using aged care services at home. Health and Quality of Life Outcomes, 22(1), 40–12. https://doi.org/10.1186/s12955-024-02257-8
Hutchinson, C., Khadka, J., Crocker, M., Lay, K., Milte, R., Whitehirst, D. G., Engel, L., & Ratcliffe, J. (2024). Examining interrater agreement between self-report and proxy-report responses for the quality of life-aged care consumers (QOL-ACC) instrument. Journal of Patient-Reported Outcomes, 8(1), 28–28. https://doi.org/10.1186/s41687-024-00705-z
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QCE-ACC
Development
Cleland, J., Hutchinson, C., Khadka, J., Milte, R., & Ratcliffe, J. (2021). What defines quality of care for older people in aged care? A comprehensive literature review. Geriatrics & Gerontology International, 21(9), 765–778. https://doi.org/10.1111/ggi.14231
Ratcliffe J., Chen G., Cleland J., Kaambwa B., Khadka J., Hutchinson C. & Milte, R. (2020) Australia’s aged care system: assessing the views and preferences of the general public for quality of care and future funding: Research Paper 6: A research study for the Royal Commission into Aged Care Quality and Safety, Caring Futures Institute, Flinders University, South Australia.
Chen, G., Ratcliffe, J., Milte, R., Khadka, J., & Kaambwa, B. (2021). Quality of care experience in aged care: An Australia-Wide discrete choice experiment to elicit preference weights. Social Science & Medicine (1982), 289, 114440–114440. https://doi.org/10.1016/j.socscimed.2021.114440
Khadka, J., Ratcliffe, J., Chen, G., Kumaran, S., Milte, R., Hutchinson, C., Savvas, S. & Batchelor, F. (2020). A new measure of quality of care in aged care: psychometric assessment, and validation of the Quality of Care Experience (QCE) questionnaire. Caring Futures Institute, Flinders University, South Australia.
Ratcliffe, J., Chen G., Khadka, J., Kumaran, S., Hutchinson, C., Milte, R., Savvas, S. & Batchelor, F. (2020). Australia’s aged care system. The quality of care experience and community expectations. Research Paper 20: A research study for the Royal Commission into Aged Care Quality and Safety, Caring Futures Institute, Flinders University, South Australia.
OTHER
Hutchinson, C., Cleland, J., Walker, R., & Ratcliffe, J. (2022). What Quality-of-Life Dimensions Are Most Important to Older Adults from Culturally and Linguistically Diverse Backgrounds Receiving Aged Care Services? An Exploratory Study. Geriatrics (Basel), 7(6), 144-. https://doi.org/10.3390/geriatrics7060144
Hutchinson, C., Worley, A., Khadka, J., Milte, R., Cleland, J., & Ratcliffe, J. (2022). Do we agree or disagree? A systematic review of the application of preference-based instruments in self and proxy reporting of quality of life in older people. Social Science & Medicine (1982), 305, 115046–115046. https://doi.org/10.1016/j.socscimed.2022.115046
Hutchinson, C., Cleland, J., McBain, C., Walker, R., Milte, R., Swaffer, K., & Ratcliffe, J. (2024). What quality of life domains are most important to older adults in residential care? Journal of Aging & Social Policy, 36(1), 21–42. https://doi.org/10.1080/08959420.2022.2134691
Lay, K., Hutchinson, C., Song, J., Milte, R., Khadka, J., & Ratcliffe, J. (2024). Cognitive interviewing for assessing the content validity of older-person specific outcome measures for quality assessment and economic evaluation: a scoping review. Quality of Life Research. https://doi.org/10.1007/s11136-024-03849-z
Lay, K., Crocker, M., Engel, L., Ratcliffe, J., Milte, R., & Hutchinson, C. (2024). Exploring older people’s understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia. Health and Quality of Life Outcomes, 22(1), 4–4. https://doi.org/10.1186/s12955-023-02222-x
Song, J., Chen, G., Khadka, J., Milte, R., & Ratcliffe, J. (2024). One and the same or different? An empirical comparison of aged care recipient and non-aged care recipient preferences for quality of aged care amongst older Australians. Social Science & Medicine (1982), 353, 117054-. https://doi.org/10.1016/j.socscimed.2024.117054
Milte, R., Jemere, D., Lay, K., Hutchinson, C., Thomas, J., Murray, J., & Ratcliffe, J. (2023). A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults. Quality of Life Research, 32(12), 3291–3308. https://doi.org/10.1007/s11136-023-03450-w
Jemere, D. M., Ratcliffe, J., Khadka, J., Lay, K., & Milte, R. (2024). Are quality of care instruments inclusive of older people living with dementia? A scoping review in long-term care settings. Dementia, 23(7), 1212–1237. https://doi.org/10.1177/14713012241270758